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Antonia Kenny

Antonia Kenny

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Join date: Jan 14, 2025

About

Hi, I’m Antonia – writer, chronic illness wrangler, professional overthinker, and co-pilot of Unremarkable Me. I live with Ehlers-Danlos Syndrome (the vascular kind, because obviously I don’t do things by halves), Chiari malformation, POTS, MCAS, and a full house of other delightful surprises that sound made up but, unfortunately, are not.


I spend most of my time trying to hold my body together with medication, humour, and the occasional bit of stylish tape. When I’m not being medically dramatic, I write—about pain, joy, grief, laughter, rage, beauty, and the relentless absurdity of trying to live a full life in a body that didn’t read the manual.

But beneath the sarcasm and the carefully hoarded spoons, there’s a reason I’m here: I want to help people like me feel seen. I know how lonely this all can be—how exhausting it is to explain yourself, to justify your pain, to smile when you're falling apart. If I can offer even a little space where someone feels understood, a little less invisible, or a little more able to laugh on a hard day—that’s the real reason I do this. That’s the win.


Whether you’re newly diagnosed, deep in the trenches, or just here because your body keeps throwing tantrums like a toddler —it means something that you’ve found your way here. This space was built for us. For the questions, the contradictions, the chaos, and the quiet triumphs.


You don’t have to have it all figured out. You don’t need to be “strong” or “brave” or “inspirational.” You just need to be you. That’s more than enough.

We’re all a little remarkable here. And that’s what makes this place extraordinary.

 Grab a cuppa. You’re not alone anymore.

Welcome to the Circus 🎪

Posts (183)

Jul 31, 20267 min
Evolved Enough to Know Better, But Not Enough to Do Better
Chronic illness changes. Patients adapt. Why does healthcare keep treating us like a frozen screenshot? Published June 2026 By Antonia @Unremarkable Me Let us begin with a confession. I find it baffling how often we celebrate the human capacity to adapt while becoming deeply suspicious the moment a chronically ill person actually does it. We love a good story about the brain rewiring itself. We admire athletes who learn new ways to move after an injury. We produce entire documentaries about...

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Jul 31, 20266 min
Living In Fight Or Flight.
When chronic illness, medical dismissal and perimenopause turn your nervous system into a one-woman surveillance department Published 27 July 2026 By Antonia @Unremarkable Me There is a very specific moment chronic illness gives you, and it is not glamorous. It is not the diagnosis reveal. It is not the dramatic scan. It is not the heroic dash through hospital doors while somebody shouts for a crash trolley. It is standing in your bedroom, perfectly upright, dogs asleep, house quiet, and...

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Jul 21, 20264 min
Conversations We Only Have With Ourselves
Published 21 July 2026 By Antonia @ Unremarkable Me The Customer Service Voice vs the Goblin in the Back Office Let’s be honest. Living with chronic illness is less “inspirational warrior rising triumphantly at dawn” and more “underpaid crisis manager who hasn’t slept since Tuesday and would quite like to speak to the manufacturer.” There is a peculiar myth that you either look sick or you do not. That illness is theatrical. Pale. Dramatic. Obvious. The reality is far stranger. You walk...

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