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Antonia Kenny

Antonia Kenny

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Join date: Jan 14, 2025

About

Hi, I’m Antonia – writer, chronic illness wrangler, professional overthinker, and co-pilot of Unremarkable Me. I live with Ehlers-Danlos Syndrome (the vascular kind, because obviously I don’t do things by halves), Chiari malformation, POTS, MCAS, and a full house of other delightful surprises that sound made up but, unfortunately, are not.


I spend most of my time trying to hold my body together with medication, humour, and the occasional bit of stylish tape. When I’m not being medically dramatic, I write—about pain, joy, grief, laughter, rage, beauty, and the relentless absurdity of trying to live a full life in a body that didn’t read the manual.

But beneath the sarcasm and the carefully hoarded spoons, there’s a reason I’m here: I want to help people like me feel seen. I know how lonely this all can be—how exhausting it is to explain yourself, to justify your pain, to smile when you're falling apart. If I can offer even a little space where someone feels understood, a little less invisible, or a little more able to laugh on a hard day—that’s the real reason I do this. That’s the win.


Whether you’re newly diagnosed, deep in the trenches, or just here because your body keeps throwing tantrums like a toddler —it means something that you’ve found your way here. This space was built for us. For the questions, the contradictions, the chaos, and the quiet triumphs.


You don’t have to have it all figured out. You don’t need to be “strong” or “brave” or “inspirational.” You just need to be you. That’s more than enough.

We’re all a little remarkable here. And that’s what makes this place extraordinary.

 Grab a cuppa. You’re not alone anymore.

Welcome to the Circus 🎪

Posts (176)

Jan 19, 20264 min
Waiting for the 2026 Ehlers–Danlos Society Criteria”
By Antonia @Unremarkable Me Published January 2026 How people with hypermobility and connective-tissue mysteries sit through science’s intermission, and why the next act matters When you’ve spent years telling doctors your joints feel like free-range spaghetti, the promise of new diagnostic criteria starts to feel like a carnival ride you have already queued for three times. There is the flutter of maybe this time. The dread of please don’t let it drop. And the familiar, low-grade nausea of...

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Jan 16, 20266 min
Explaining Chronic Illness to Kids
Or: How Not to Accidentally Terrify a Nine-Year-Old January 2026 By Antonia @Unremarkable Me There comes a moment, usually quiet and slightly sideways, when you realise a child has noticed. Not in the dramatic way adults imagine. There is no interrogation. No tears. Just a look that lingers a fraction longer than it used to. A carefully chosen question. A pause when you sit down one too many times. Children are extraordinary pattern recognisers. They pick up on stress, routine changes, and...

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Jan 6, 20264 min
The Emotional Roller Coaster of Chronic Illness
By Antonia @ Unremarkable Me | Published January 2026 Living with chronic illness is not a gentle cruise down a lazy river with a straw hat and a soundtrack. It is a non-consensual roller coaster built by someone who lost the instruction manual, skipped the safety inspection, and thought “loop-the-loop” sounded like a personality trait. You do not get off just because you asked nicely. You do not get a refund. You do not even get a map. And for the past six months, this chronically ill,...

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